A poignant video showing both the beauty of our girls and the harshness of the disorder.

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The Rett Syndrome Research Trust is a non-profit exclusively devoted to global research on Rett Syndrome and related MECP2 disorders. Our goal is to heal children and adults who will otherwise suffer the effects of these disorders for the rest of their lives. Subscribe for updates on Rett Syndrome and The Rett Syndrome Research Trust at http://bit.ly/reverserett