Find out from real patients what life with chronic disease feels like. The invisible pain, the insurance battles, and the hidden full-time job "being sick" entails, can feel like too much at times, and it is a weight you shouldn't have to carry alone.

It is so important that patients with rare and chronic diseases are heard. Follow patient stories detailing life with cystic fibrosis, lupus, multiple sclerosis, thyroiditis, Chron's, RA, and other chronic and rare diseases. 

Honoring her daughter's request to share her story of a shortened life lived fully, Mallory's words sketch an intimate portrait of life with chronic disease and the dynamic power of the patient voice. In 2019, shortly after Mallory Smith lost her battle to Cystic Fibrosis, Diane Shader Smith (Mallory's mother) published "Salt in My Soul" - a written record of Mallory Smith's brief life. A powerful presentation of human connection, their message continues to move the healthcare advocacy needle in profound ways.

We all have a story to share. Together these narratives stitch together a community of empathy and understanding. You are not alone. So join the Infusion Access Foundation (IAF) and watch this recorded webinar and Q and A with renowned Author and Speaker, Diane Shader Smith.

Infusion Access Foundation (IAF) is a community of patients united to protect access to treatments that you get at a clinic, such as infusions and injections. We support each other across all diseases and advocate with one voice that reaches policy makers.